CAE

Research Materials and Data

The following research material and data is being made available to hasten the public availability of research undertaken by and through the Centre. The material and data released here may include:

  1. online survey tools;
  2. aggregate data that cannot be attributed to individuals;
  3. quotes from participants attributed to codes, pseudonyms and demographic data;
  4. data derived from collaborative activities, where identity of groups and individuals will require negotiation with the participants (e.g., First Nations groups, government officials);
  5. unpublished data without personally identifying features, identified in aggregate and by demographics;
  6. public presentations soliciting public discussion with participants’ awareness; and/or
  7. electronically recorded accounts (“digital narratives”) made available at the discretion of the participant providing or constructing the account, whether by email or other electronic media.

Bornik, Z., Dowlatabadi, H., Ahmad, R., Danielson, P., Levy, E., Johnston Monje, D., & Guenther, O. (2004). "Difficult Decisions about ß-Thalassemia: Tracking Norm Evolution via Online Survey Questions and Advice."

Abstract: The genomics and human health on-line survey was developed by the Norms Evolving in Response to Dilemmas (NERD) research group to explore ethically significant decision making about an emerging technology. This document makes the survey content available for reference and criticism. Please do not use this document to take the survey; it lacks crucial features found only in the on-line version. For papers describing the survey, other surveys, and results of our on-line experiments, please visit this website. [More]

Bornik, Z., Ahmad, R., Wilkin, J., Longstaff, H., Dowlatabadi, H., Levy, E., & Danielson, P. (2004). "Difficult Decisions about Salmon Genomics and Aquaculture: Tracking Norm Evolution via Online Survey Questions and Advice."

Abstract: The salmon genomics and aquaculture on-line survey was developed by Norms Evolving in Response to Dilemmas (NERD) research group to explore ethically significant decision making about an emerging technology. This document makes the survey content available for reference and criticism. Please do not use this document to take the survey; it lacks crucial features found only in the on-line version. For papers describing the survey, other surveys, and results of our on-line experiments, please visit this website. [More]

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