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Susan M. Cox (Chair) |
Michael M. Burgess | Lori d'Agincourt-Canning | Andre Smith |
| Jessica Easton | Christine Maheu | Bryn Williams-Jones |
How does industry sponsorship of research affect the way that genomic knowledge gets produced and applied? To what extent are family relations, experiences of familial and community-based support, and access to social services and private insurance affected by genetic knowledge and the availability of genetic testing? Does the availability of genetic testing change the way we perceive our biological or social relatedness to others? How do our long-standing culturally shaped views of our biological and social relatedness to others influence how genomic knowledge gets produced and applied? These are some of the research questions being explored by the Genetics and Ethics Research Group, an interdisciplinary team, founded by Michael Burgess (Chair in Biomedical Ethics), that includes 2 Post-Doctoral Fellows and 4 Ph.D. students, with links to faculty in Anthropology, Sociology, Law, Philosophy, Nursing, Psychology, and the Centre for Health Sciences and Policy Research.
The members of the Genetics and Ethics Research Group are also active in clinical education and clinical ethics. They teach in the Doctor/Dentist, Patient and Society course (UBC Faculty of Medical), the Health Care Ethics course (Interprofessional Health and Human Service), and support other health professional curriculums. Members of the group serve on the UBC Research Ethics Board, and ethics committees at the B.C. Children’s & Women’s Hospital, the B.C. Cancer Agency, and North Shore Health Region. Finally, the group is concerned with supporting and expanding community involvement, and in maintaining transparency and accountability in their various research projects.
The group’s research interests can be categorised by two broad themes:
Social Effects and Context of Genetic Knowledge and Technology |
Culture, Commercialization and the Production of Genomic Knowledge |
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Social Construction and Clinical Management of ADPKD Ethical/Moral Dimensions of Genetic Risk: HD, BRCA Interpretations and Meanings of Inconclusive Genetic Testing Results to Breast Cancer Susceptibility Moral Experiences of Inherited Risk for Breast and Ovarian Cancer Adolescent Experience of Risk for HD |
Financing the Pipe: Cultural Meanings of Disease in the Life History of Pharmaceuticals Collectives and Health Research Commercial Genetic Testing: Benefits That Limit Public Funding but Permit Private Access Communities and Managing Genomics and Ethics The 'Culture' of Genomics: Ethics of Research and Commercialization |