Ms. Bell’s research aims to shed light on an important issue within oncology research communities in North America and across the globe. Despite the heavy reliance on clinical trials data for the development of new practice advances, only a small minority of people living with cancer participate in this type of clinical research. Although much emphasis within the health literature has been placed on the predictive factors and reasons associated with low accrual rates and patients’ hesitancy to participate in trials, little attention has been paid to patients’ decision-making process regarding trial participation and the associated ethical components. Ms. Bell’s research uses qualitative methods to explore cancer patients’ clinical trial decisions through the ethics lens of relational autonomy, thereby potentially uncovering the complex social and political factors that surround trial decision making. Ms. Bell hopes that this understanding will lead to revised clinical trial enrolment procedures that will better support cancer patients in identifying their values and needs, and help them overcome the relational and sociopolitical barriers that may hinder decision making re: trial participation.
In addition to her research, Ms. Bell also has training in clinical, organizational, and research ethics. From 2007-2008 she completed a full-time Clinical and Organizational Ethics Fellowship at the University of Toronto,
Joint Centre for Bioethics. From 2009-2010, while working on her doctoral dissertation, she completed a part-time Clinical Ethics Fellowship at
Providence Health Care. Ms. Bell has since worked as an ethics consultant for the
BC Cancer Agency and
Provincial Health Ethics Network in Alberta, Canada. She also serves as an ethicist on several hospital and university committees, including the University of British Columbia Behavioural Research Ethics Board.
Bell J, Ho A, “Authenticity as a necessary condition for voluntary choice: a case study in cancer clinical trial decision making” American Journal of Bioethics 2011,11:8; 33-35.
Bell K, McCullough L, Salmon A, Bell J, “’Every space is claimed’” Smokers’ experiences of tobacco denormalisation” Sociology of Health & Illness 2010, 32:6; 914-29.
Bell K, Salmon A, Bowers M, Bell J, McCullough L, “Smoking, stigma, and tobacco denormalisation: further reflections on the use of stigma as a public health tool” Social Science & Medicine 2010, 70:6; 795-9.